Identifying causes of perceptual differences in problematic activities of daily life between patients with COPD and proxies: A qualitative study

Nienke Nakken*, Martijn A. Spruit, Esther H. A. van den Bogaart, Rik Crutzen, Jean W. M. Muris, Emiel F. M. Wouters, Daisy J. A. Janssen

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background/aim Proxies of patients with COPD are often unable to identify the patients' most important problematic activities of daily life (ADLs). The aim was to explore causes of perceptual differences between patients with COPD and their proxies about the problematic ADLs of the patient. Methods Ten open structured interviews were conducted in the presence of both the patient and proxy. Patients' five most important problematic ADLs identified by the couple were compared and discussed. For data analysis, open coding, axial coding and selective coding were conducted. Results Ten main causes were identified: differences in the level of satisfaction, or acceptance; estimation of own capabilities; problematic ADL goes unnoticed; proxy is not present during problematic ADL; problematic ADL is not performed (often or anymore), or not (longer) talked about; masked by another problematic ADL; value judgement; solution for problematic ADL. Conclusion The causes of perceptual differences between patients and proxies about patients' problematic ADLs were related to both the patient's and the proxy's perception.

Original languageEnglish
Pages (from-to)44-51
Number of pages8
JournalAustralian Occupational Therapy Journal
Volume66
Issue number1
DOIs
Publication statusPublished - Feb 2019

Keywords

  • activities of daily living
  • carers
  • chronic disease
  • qualitative research
  • OBSTRUCTIVE PULMONARY-DISEASE
  • OLDER-ADULTS
  • HEALTH-CARE
  • CAREGIVERS
  • REHABILITATION
  • EXPERIENCES
  • VALIDITY
  • CLIENT
  • BURDEN

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