Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Hans C. J. W. Kerstens*, Bas J. H. Van Lith, Maarten J. Nijkrake, Bert J. M. De Swart, Laura A. C. Van den Bemd, Rob J. E. M. Smeets, Fheodoroff Klemens, Bart P. C. Van de Warrenburg, Philip J. Van der Wees, Alexander C. H. Geurts

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Original languageEnglish
Article number283
Number of pages10
JournalOrphanet Journal of Rare Diseases
Volume16
Issue number1
DOIs
Publication statusPublished - 24 Jun 2021

Keywords

  • Hereditary spastic paraplegia
  • Spasticity
  • Survey
  • Patient-reported outcomes
  • Needs assessment
  • Healthcare utilization
  • Experienced treatment effects
  • OCCUPATIONAL-THERAPY
  • PARAPARESIS
  • FEATURES
  • EFFICACY

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