Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Hans C. J. W. Kerstens; Bas J. H. Van Lith; Maarten J. Nijkrake; Bert J. M. De Swart; Laura A. C. Van den Bemd; Rob J. E. M. Smeets; Fheodoroff Klemens; Bart P. C. Van de Warrenburg; Philip J. Van der Wees; Alexander C. H. Geurts

doi:10.1186/s13023-021-01915-0

Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Hans C. J. W. Kerstens^*, Bas J. H. Van Lith, Maarten J. Nijkrake, Bert J. M. De Swart, Laura A. C. Van den Bemd, Rob J. E. M. Smeets, Fheodoroff Klemens, Bart P. C. Van de Warrenburg, Philip J. Van der Wees, Alexander C. H. Geurts

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Original language	English
Article number	283
Number of pages	10
Journal	Orphanet Journal of Rare Diseases
Volume	16
Issue number	1
DOIs	https://doi.org/10.1186/s13023-021-01915-0
Publication status	Published - 24 Jun 2021

Keywords

Hereditary spastic paraplegia
Spasticity
Survey
Patient-reported outcomes
Needs assessment
Healthcare utilization
Experienced treatment effects
OCCUPATIONAL-THERAPY
PARAPARESIS
FEATURES
EFFICACY

Access to Document

10.1186/s13023-021-01915-0

Cite this

Kerstens, H. C. J. W., Van Lith, B. J. H., Nijkrake, M. J., De Swart, B. J. M., Van den Bemd, L. A. C., Smeets, R. J. E. M., Klemens, F., Van de Warrenburg, B. P. C., Van der Wees, P. J., & Geurts, A. C. H. (2021). Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands. Orphanet Journal of Rare Diseases, 16(1), [283]. https://doi.org/10.1186/s13023-021-01915-0

Kerstens, Hans C. J. W. ; Van Lith, Bas J. H. ; Nijkrake, Maarten J. ; De Swart, Bert J. M. ; Van den Bemd, Laura A. C. ; Smeets, Rob J. E. M. ; Klemens, Fheodoroff ; Van de Warrenburg, Bart P. C. ; Van der Wees, Philip J. ; Geurts, Alexander C. H. / Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia : a web-based survey in the Netherlands. In: Orphanet Journal of Rare Diseases. 2021 ; Vol. 16, No. 1.

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author = "Kerstens, {Hans C. J. W.} and {Van Lith}, {Bas J. H.} and Nijkrake, {Maarten J.} and {De Swart}, {Bert J. M.} and {Van den Bemd}, {Laura A. C.} and Smeets, {Rob J. E. M.} and Fheodoroff Klemens and {Van de Warrenburg}, {Bart P. C.} and {Van der Wees}, {Philip J.} and Geurts, {Alexander C. H.}",

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Kerstens, HCJW, Van Lith, BJH, Nijkrake, MJ, De Swart, BJM, Van den Bemd, LAC, Smeets, RJEM, Klemens, F, Van de Warrenburg, BPC, Van der Wees, PJ & Geurts, ACH 2021, 'Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands', Orphanet Journal of Rare Diseases, vol. 16, no. 1, 283. https://doi.org/10.1186/s13023-021-01915-0

Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia : a web-based survey in the Netherlands. / Kerstens, Hans C. J. W.; Van Lith, Bas J. H.; Nijkrake, Maarten J.; De Swart, Bert J. M.; Van den Bemd, Laura A. C.; Smeets, Rob J. E. M.; Klemens, Fheodoroff; Van de Warrenburg, Bart P. C.; Van der Wees, Philip J.; Geurts, Alexander C. H.

In: Orphanet Journal of Rare Diseases, Vol. 16, No. 1, 283, 24.06.2021.

Research output: Contribution to journal › Article › Academic › peer-review

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KW - PARAPARESIS

KW - FEATURES

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