Health Research And Health Data: The Existing Relationship And/Or The Possible Relationship-In Search Of A Consensus Solution

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Europe has a highly regulated ecosystem when processing personal data. This protection is reinforced for special categories such as personal health data. The use of this data is often analyzed only from the perspective of guaranteeing individual rights. When used for health research, it is also necessary for such analysis to consider collective rights/interests. In the context of health research, this review aims to consider both individual and collective interests within the existing legislation, in an attempt to find a balance that allows less bureaucratization of research.
Original languageEnglish
Pages (from-to)515-548
Number of pages35
JournalMedicine and Law
Volume43
Issue number4
Publication statusPublished - 1 Dec 2024

Keywords

  • Personal Health Data
  • Health Research
  • Collective and Individual Interests

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