(Health-Related) Quality of Life as an Outcome in Studies of Axial Spondyloarthritis

Uta Kiltz*, David Kiefer, Annelies Boonen

*Corresponding author for this work

Research output: Contribution to journal(Systematic) Review article peer-review

5 Citations (Web of Science)

Abstract

The most prevalent health concerns in patients with axial spondyloarthritis (axSpA) include spinal stiffness, spinal pain, mobility limitations, fatigue, and disturbed sleep. Many patients experience impairments related to extraspinal disease, extra-articular disease, or drug side effects. To capture overall life impact, self-reported measurement instruments assessing health-related quality of life (HRQoL) have been developed. This article summarizes the literature on relevant concepts and frameworks when measuring overall health or HRQoL, available measures assessing this outcome in axSpA, the hierarchical relations between overall health/ HRQoL and specific axSpA impairments, and the role of context when interpreting interventions for overall health or HRQoL outcomes.

Original languageEnglish
Pages (from-to)379-393
Number of pages15
JournalRheumatic Disease Clinics of North America
Volume46
Issue number2
DOIs
Publication statusPublished - May 2020

Keywords

  • Axial spondyloarthritis
  • Health-related quality of life
  • Functioning and health
  • Contextual factors
  • Life satisfaction
  • ANKYLOSING-SPONDYLITIS
  • RHEUMATOID-ARTHRITIS
  • QUESTIONNAIRE
  • RELIABILITY
  • VALIDITY
  • UTILITY
  • INDEX
  • IMPROVEMENT
  • DISABILITY
  • EUROQOL

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