In everyday life, women who have breast cancer or have had breast cancer are often described as unspoilt, feminine and energetic 'survivors'. This study found that these descriptors are inconsistent with how women actually experience their disease. Many women also face the debilitating and disfiguring effects of breast cancer. Breast prostheses and mammography devices, for example, can hinder daily functioning and sharing their experience of the disease can cause conflict and distance in a relationship. Furthermore, the term 'reconstruction' can create false expectations about reconstructive breast surgery: women will never get their 'old' breasts back. While personal blogs allow women to present themselves in a different way, there are very few public platforms that help women relate to the stories of other breast cancer patients and ascribe meaning to their disease and their changing bodies. This dissertation therefore stresses the importance of making disease experience, disability, disfigurement and damage more publicly accessible. After all, sharing these experiences is extremely important for people living with a changed body.
|Award date||14 Dec 2016|
|Place of Publication||Maastricht|
|Publication status||Published - 2016|
- breast cancer
- disease experience
- home environment