End-of-life preferences of people with advanced chronic obstructive pulmonary disease

M Aurora Mendes*, Anouk Jl Muijsenberg, Sarah Houben-Wilke, Carmen Hm Houben, Martijn A Spruit, Alda Marques, Daisy J A Janssen

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

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Abstract

OBJECTIVES: To identify end-of-life preferences of people with advanced chronic obstructive pulmonary disease (COPD) and to compare characteristics between those who wish to discuss the end-of-life and those who do not. METHODS: An analysis of the baseline data of a randomised controlled trial was performed including people with COPD GOLD stages III-IV or former quadrant D with modified Medical Research Council questionnaire grade =2, after hospital discharge following an exacerbation. Participants were interviewed using the End-of-Life Preferences Interview. RESULTS: A total of 165 individuals (53% men; 68±9 years old; 55% care dependent) were included. Most participants wished to take part in shared decision-making (78%), to be informed about a short life expectancy (82%), to discuss the end-of-life (82%), to have loved ones around at death (87%) and to choose when to die (70%). They also reported accepting opioids (74%). Preferences for who to provide physical care, the place, consciousness and atmosphere at death as well as life-sustaining treatments were heterogeneous. Participants who wanted to discuss the end-of-life had a significantly higher educational level (p=0.030) and worse health status than participants who did not (p=0.007). CONCLUSIONS: End-of-life preferences of people with advanced COPD were heterogeneous, however, most wished to discuss it, especially those with higher educational level and worse health status. TRIAL REGISTRATION NUMBER: NTR3940.
Original languageEnglish
Article numberspcare-2024-005067
JournalBMJ Supportive and Palliative Care
DOIs
Publication statusE-pub ahead of print - 19 Sept 2024

Keywords

  • Advance Care Planning
  • Chronic obstructive pulmonary disease
  • End of life care
  • Palliative Care

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