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Drawing cancer chronicles: A qualitative study to evaluate narrative meaning-making over time and in response to a meaning-centred care intervention

  • Emily R.E. Evans*
  • , Niels van Poecke
  • , Maite Portela
  • , Michael Scherer-Rath
  • , Yvonne Weeseman
  • , Zarah M. Bood
  • , Nirav Christophe
  • , Henny Dörr
  • , Judith de Vos-Geelen
  • , Aart Beeker
  • , Gerty de Klerk
  • , Eric Bras
  • , Hugo Vlug
  • , Frans Bossink
  • , Frans Savelkoul
  • , Liesbeth M. Timmermans
  • , Mirjam A.G. Sprangers
  • , Esther Helmich
  • , Hanneke W.M. van Laarhoven
  • *Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

The diagnosis of incurable cancer can disrupt life stories, undermining meaning-making and challenging self-identity. People may therefore need to search for and create new stories about their lives that incorporate their diagnosis. Arts-based narrative interventions are being explored to support this existential process of narrative meaning-making. However, developing effective existential support may be limited by the lack of methods capable of investigating their impact. This study is the first to explore narrative meaning-making across time and a meaning-centred care intervention by longitudinally using ‘Rich Pictures’ (RPs) – hand-drawn visual narratives. We analysed repeated RPs about living with incurable cancer from thirty-eight participants in two studies: one incorporating an arts-based narrative intervention, and one without. RPs were compared across time and the two groups using an inductive, multi-level, and participatory analysis approach. Our findings highlighted six strategies variably used by participants to reconstruct their narratives over time: repeating, retaining, repurposing, reinforcing, reducing, and reassembling. Differences were found in the employment of these strategies between the two different studies, with arts-based intervention participants predominantly developing new ways of narrating and relating to cancer as a disruptive life event. We conclude that people living with incurable cancer employ a range of strategies in reconstructing their narratives. Arts-based interventions may support this existential process. The repeated use of RPs is a valuable method for investigating narrative meaning-making over time, across groups, and interventions, offering insights to evaluate and develop meaning-centred care in oncology.
Original languageEnglish
Article numbere0341150
Number of pages17
JournalPLOS ONE
Volume21
Issue number1 January
DOIs
Publication statusPublished - 1 Jan 2026

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