TY - JOUR
T1 - Drawing cancer chronicles
T2 - A qualitative study to evaluate narrative meaning-making over time and in response to a meaning-centred care intervention
AU - Evans, Emily R.E.
AU - van Poecke, Niels
AU - Portela, Maite
AU - Scherer-Rath, Michael
AU - Weeseman, Yvonne
AU - Bood, Zarah M.
AU - Christophe, Nirav
AU - Dörr, Henny
AU - de Vos-Geelen, Judith
AU - Beeker, Aart
AU - de Klerk, Gerty
AU - Bras, Eric
AU - Vlug, Hugo
AU - Bossink, Frans
AU - Savelkoul, Frans
AU - Timmermans, Liesbeth M.
AU - Sprangers, Mirjam A.G.
AU - Helmich, Esther
AU - van Laarhoven, Hanneke W.M.
N1 - Funding Information:
Funding: This work was supported by the Dutch Cancer Society, grant number 11507, received by HvL. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. https://www.kwf.nl/.
Publisher Copyright:
© 2026 Evans et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
PY - 2026/1/1
Y1 - 2026/1/1
N2 - The diagnosis of incurable cancer can disrupt life stories, undermining meaning-making and challenging self-identity. People may therefore need to search for and create new stories about their lives that incorporate their diagnosis. Arts-based narrative interventions are being explored to support this existential process of narrative meaning-making. However, developing effective existential support may be limited by the lack of methods capable of investigating their impact. This study is the first to explore narrative meaning-making across time and a meaning-centred care intervention by longitudinally using ‘Rich Pictures’ (RPs) – hand-drawn visual narratives. We analysed repeated RPs about living with incurable cancer from thirty-eight participants in two studies: one incorporating an arts-based narrative intervention, and one without. RPs were compared across time and the two groups using an inductive, multi-level, and participatory analysis approach. Our findings highlighted six strategies variably used by participants to reconstruct their narratives over time: repeating, retaining, repurposing, reinforcing, reducing, and reassembling. Differences were found in the employment of these strategies between the two different studies, with arts-based intervention participants predominantly developing new ways of narrating and relating to cancer as a disruptive life event. We conclude that people living with incurable cancer employ a range of strategies in reconstructing their narratives. Arts-based interventions may support this existential process. The repeated use of RPs is a valuable method for investigating narrative meaning-making over time, across groups, and interventions, offering insights to evaluate and develop meaning-centred care in oncology.
AB - The diagnosis of incurable cancer can disrupt life stories, undermining meaning-making and challenging self-identity. People may therefore need to search for and create new stories about their lives that incorporate their diagnosis. Arts-based narrative interventions are being explored to support this existential process of narrative meaning-making. However, developing effective existential support may be limited by the lack of methods capable of investigating their impact. This study is the first to explore narrative meaning-making across time and a meaning-centred care intervention by longitudinally using ‘Rich Pictures’ (RPs) – hand-drawn visual narratives. We analysed repeated RPs about living with incurable cancer from thirty-eight participants in two studies: one incorporating an arts-based narrative intervention, and one without. RPs were compared across time and the two groups using an inductive, multi-level, and participatory analysis approach. Our findings highlighted six strategies variably used by participants to reconstruct their narratives over time: repeating, retaining, repurposing, reinforcing, reducing, and reassembling. Differences were found in the employment of these strategies between the two different studies, with arts-based intervention participants predominantly developing new ways of narrating and relating to cancer as a disruptive life event. We conclude that people living with incurable cancer employ a range of strategies in reconstructing their narratives. Arts-based interventions may support this existential process. The repeated use of RPs is a valuable method for investigating narrative meaning-making over time, across groups, and interventions, offering insights to evaluate and develop meaning-centred care in oncology.
U2 - 10.1371/journal.pone.0341150
DO - 10.1371/journal.pone.0341150
M3 - Article
SN - 1932-6203
VL - 21
JO - PLOS ONE
JF - PLOS ONE
IS - 1 January
M1 - e0341150
ER -