Distributed Analytics on Sensitive Medical Data: The Personal Health Train

Oya Beyan*, Ananya Choudhury, Johan Van Soest, Oliver Kohlbacher, Lukas Zimmermann, Holger Stenzhorn, Md. Rezaul Karim, Michel Dumontier, Stefan Decker, Luiz Olavo Bonino Da Silva Santos, Andre Dekker

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

26 Citations (Web of Science)

Abstract

In recent years, as newer technologies have evolved around the healthcare ecosystem, more and more data have been generated. Advanced analytics could power the data collected from numerous sources, both from healthcare institutions, or generated by individuals themselves via apps and devices, and lead to innovations in treatment and diagnosis of diseases; improve the care given to the patient; and empower citizens to participate in the decision-making process regarding their own health and well-being. However, the sensitive nature of the health data prohibits healthcare organizations from sharing the data. The Personal Health Train (PHT) is a novel approach, aiming to establish a distributed data analytics infrastructure enabling the (re)use of distributed healthcare data, while data owners stay in control of their own data. The main principle of the PHT is that data remain in their original location, and analytical tasks visit data sources and execute the tasks. The PHT provides a distributed, flexible approach to use data in a network of participants, incorporating the FAIR principles. It facilitates the responsible use of sensitive and/or personal data by adopting international principles and regulations. This paper presents the concepts and main components of the PHT and demonstrates how it complies with FAIR principles.

Original languageEnglish
Pages (from-to)96-107
Number of pages12
JournalData Intelligence
Volume2
Issue number1-2
DOIs
Publication statusPublished - 1 Jan 2020

Keywords

  • Distributed analytics
  • Data reuse
  • FAIR
  • Health data
  • Ethics and privacy

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