TY - JOUR
T1 - Development of an environmental contextual factor item set relevant to global functioning and health in patients with axial Spondyloarthritis
AU - Kiltz, Uta
AU - Boonen, Annelies
AU - van der Heijde, Désirée
AU - Bautista-Molano, Wilson
AU - Vargas, Ruben Burgos
AU - Chiowchanwisawakit, Praveena
AU - El-Zorkany, Bassel
AU - Gaydukova, Inna
AU - Geher, Pal
AU - Gossec, Laure
AU - Gilio, Michele
AU - Grazio, Simeon
AU - Gu, Jieruo
AU - Khan, Muhammad Asim
AU - Kim, Tae-Jong
AU - Maksymowych, Walter P
AU - Marzo-Ortega, Helena
AU - Navarro-Compán, Victoria
AU - Ozgocmen, Salih
AU - Patrikos, Dimos
AU - Pimentel-Santos, Fernando Manuel
AU - Reveille, John
AU - Schirmer, Michael
AU - Stebbings, Simon
AU - Van den Bosch, Filip
AU - Weber, Ulrich
AU - Braun, Juergen
N1 - © The Author(s) 2021. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For permissions, please email: [email protected].
PY - 2022/5/5
Y1 - 2022/5/5
N2 - OBJECTIVE: To describe the development of an Environmental contextual factors (EF) Item Set (EFIS) accompanying the disease specific Assessment of SpondyloArthritis international Society Health Index (ASAS HI).METHOD: First, a candidate item pool was developed by linking items from existing questionnaires to 13 EF previously selected for the ICF/ASAS Core Set. Second, using data from two international surveys, which contained the EF item pool as well as the items from the ASAS HI, the number of EF-items was reduced based on the correlation between the item and the ASAS HI sum score combined with expert opinion. Third, the final English EFIS was translated into 15 languages and cross-culturally validated.RESULTS: The initial item pool contained 53 EF addressing 4 ICF EF-chapters: products and technology (e1), support and relationship (e3), attitudes (e4) and health services (e5). Based on 1754 responses of axial spondyloarthritis patients in an international survey, 44 of 53 initial items were removed based on low correlations to the ASAS HI or redundancy combined with expert opinion. 9 items of the initial item pool (range correlation 0.21-0.49) form the final EFIS. The EFIS was translated into 15 languages and field tested in 24 countries.CONCLUSIONS: An EFIS is available complementing the ASAS HI and helps to interpret the ASAS HI results by gaining an understanding of the interaction between a health condition and contextual factors. The EFIS emphasizes the importance of support and relationships, as well as attitudes of the patient and health services in relation to self-reported health.
AB - OBJECTIVE: To describe the development of an Environmental contextual factors (EF) Item Set (EFIS) accompanying the disease specific Assessment of SpondyloArthritis international Society Health Index (ASAS HI).METHOD: First, a candidate item pool was developed by linking items from existing questionnaires to 13 EF previously selected for the ICF/ASAS Core Set. Second, using data from two international surveys, which contained the EF item pool as well as the items from the ASAS HI, the number of EF-items was reduced based on the correlation between the item and the ASAS HI sum score combined with expert opinion. Third, the final English EFIS was translated into 15 languages and cross-culturally validated.RESULTS: The initial item pool contained 53 EF addressing 4 ICF EF-chapters: products and technology (e1), support and relationship (e3), attitudes (e4) and health services (e5). Based on 1754 responses of axial spondyloarthritis patients in an international survey, 44 of 53 initial items were removed based on low correlations to the ASAS HI or redundancy combined with expert opinion. 9 items of the initial item pool (range correlation 0.21-0.49) form the final EFIS. The EFIS was translated into 15 languages and field tested in 24 countries.CONCLUSIONS: An EFIS is available complementing the ASAS HI and helps to interpret the ASAS HI results by gaining an understanding of the interaction between a health condition and contextual factors. The EFIS emphasizes the importance of support and relationships, as well as attitudes of the patient and health services in relation to self-reported health.
KW - spondyloarthritis
KW - contextual factors
KW - outcome research
KW - ANKYLOSING-SPONDYLITIS
KW - INTERNATIONAL CLASSIFICATION
KW - DISABILITY
KW - CONSENSUS
KW - OUTCOMES
KW - ASAS
U2 - 10.1093/rheumatology/keab653
DO - 10.1093/rheumatology/keab653
M3 - Article
C2 - 34534275
SN - 1462-0324
VL - 61
SP - 2054
EP - 2062
JO - Rheumatology
JF - Rheumatology
IS - 5
ER -