Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability

H. Voss; A.G.F.M. Vogel; A.M.A. Wagemans; A.L. Francke; J.F.M. Metsemakers; A.M. Courtens; A.J.E. de Veer

doi:10.1352/1934-9556-59.1.39

Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability

H. Voss^*, A.G.F.M. Vogel, A.M.A. Wagemans, A.L. Francke, J.F.M. Metsemakers, A.M. Courtens, A.J.E. de Veer

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.

Original language	English
Pages (from-to)	39-54
Number of pages	16
Journal	Intellectual and Developmental Disabilities
Volume	59
Issue number	1
DOIs	https://doi.org/10.1352/1934-9556-59.1.39
Publication status	Published - 1 Feb 2021

Keywords

adults
advance care planning
community
decision-making
end
end of life
future
intellectual disability
of-life care
older-people
palliative care
patient
physicians
services
OF-LIFE CARE
SERVICES
ADULTS
FUTURE
PHYSICIANS
OLDER-PEOPLE
DECISION-MAKING
COMMUNITY
END
PATIENT

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10.1352/1934-9556-59.1.39

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Voss, H., Vogel, A. G. F. M., Wagemans, A. M. A., Francke, A. L., Metsemakers, J. F. M., Courtens, A. M., & de Veer, A. J. E. (2021). Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability. Intellectual and Developmental Disabilities, 59(1), 39-54. https://doi.org/10.1352/1934-9556-59.1.39

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abstract = "In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.",

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author = "H. Voss and A.G.F.M. Vogel and A.M.A. Wagemans and A.L. Francke and J.F.M. Metsemakers and A.M. Courtens and {de Veer}, A.J.E.",

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Voss, H, Vogel, AGFM, Wagemans, AMA, Francke, AL, Metsemakers, JFM, Courtens, AM & de Veer, AJE 2021, 'Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability', Intellectual and Developmental Disabilities, vol. 59, no. 1, pp. 39-54. https://doi.org/10.1352/1934-9556-59.1.39

Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability. / Voss, H.; Vogel, A.G.F.M.; Wagemans, A.M.A. et al.
In: Intellectual and Developmental Disabilities, Vol. 59, No. 1, 01.02.2021, p. 39-54.

Research output: Contribution to journal › Article › Academic › peer-review

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ER -

Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability

Abstract

Keywords

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