Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability

H. Voss*, A.G.F.M. Vogel, A.M.A. Wagemans, A.L. Francke, J.F.M. Metsemakers, A.M. Courtens, A.J.E. de Veer

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

1 Citation (Web of Science)

Abstract

In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.
Original languageEnglish
Pages (from-to)39-54
Number of pages16
JournalAmerican Journal on Intellectual and Development Disabilities
Volume59
Issue number1
DOIs
Publication statusPublished - 1 Feb 2021

Keywords

  • adults
  • advance care planning
  • community
  • decision-making
  • end
  • end of life
  • future
  • intellectual disability
  • of-life care
  • older-people
  • palliative care
  • patient
  • physicians
  • services
  • OF-LIFE CARE
  • SERVICES
  • ADULTS
  • FUTURE
  • PHYSICIANS
  • OLDER-PEOPLE
  • DECISION-MAKING
  • COMMUNITY
  • END
  • PATIENT

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