Development and usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy in gout

Ritch Te Kampe; Annelies Boonen; Tim L Jansen; Jan Mathis Elling; Marcel Flendrie; Yvonne van Eijk-Hustings; Matthijs Janssen; Caroline van Durme; Hein de Vries

doi:10.1186/s12911-022-01833-6

Development and usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy in gout

Ritch Te Kampe^*, Annelies Boonen, Tim L Jansen, Jan Mathis Elling, Marcel Flendrie, Yvonne van Eijk-Hustings, Matthijs Janssen, Caroline van Durme, Hein de Vries

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

BACKGROUND: The aim of this study is to develop and assess usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy (ULT) among gout patients in a clinical setting.

METHODS: The content of the tool was based on the Integrated Change (I-Change) model. This model combines various socio-cognitive theories and assumes behavioral change is a result of becoming aware of the necessity of change by integrating pre-motivational, motivational, and post-motivational factors. An expert group (five gout experts, three health services researchers, and one health behavior expert) was assembled that decided in three meetings on the tool's specific content (assessments and personalized feedback) using information from preparatory qualitative studies and literature reviews. Usability was tested by a think aloud approach and validated usability questionnaires.

RESULTS: The I-Change Gout tool contains three consecutive sessions comprising 80 questions, 66 tailored textual feedback messages, and 40 tailored animated videos. Navigation through the sessions was determined by the patients' intention to adapt suboptimal ULT adherence. After the sessions, patients receive an overview of the personalized advices and plans to support ULT adherence. Usability testing among 20 gout patients that (ever) used ULT and seven healthcare professionals revealed an overall score for the tool of 8.4 ± 0.9 and 7.7 ± 1.0 (scale 1-10). Furthermore, participants reported a high intention to use and/or recommend the tool to others. Participants identified some issues for further improvement (e.g. redundant questions, technical issues, and text readability). If relevant, these were subsequently implemented in the I-Change Gout tool, to allow further testing among the following participants.

CONCLUSION: This study provides initial support for the usability by patients and healthcare professionals of the I-Change Gout tool to support ULT adherence behavior.

Original language	English
Article number	95
Number of pages	11
Journal	BMC Medical Informatics and Decision Making
Volume	22
Issue number	1
DOIs	https://doi.org/10.1186/s12911-022-01833-6
Publication status	Published - 7 Apr 2022

Keywords

BEHAVIORS
CARE
EDUCATION
EFFICACY
ENGAGEMENT
Gout
Gout Suppressants/therapeutic use
Gout/chemically induced
HEALTH LITERACY
Health information system
Humans
INTERVENTIONS
Internet
MANAGEMENT
MEDICATION ADHERENCE
Medication adherence
Motivation
PERCEPTIONS
Program evaluation
Self-management
Uric Acid/therapeutic use
BELIEFS

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10.1186/s12911-022-01833-6Licence: CC BY

Cite this

@article{b53f127cc6c340219f9776b0a410b560,

title = "Development and usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy in gout",

abstract = "BACKGROUND: The aim of this study is to develop and assess usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy (ULT) among gout patients in a clinical setting.METHODS: The content of the tool was based on the Integrated Change (I-Change) model. This model combines various socio-cognitive theories and assumes behavioral change is a result of becoming aware of the necessity of change by integrating pre-motivational, motivational, and post-motivational factors. An expert group (five gout experts, three health services researchers, and one health behavior expert) was assembled that decided in three meetings on the tool's specific content (assessments and personalized feedback) using information from preparatory qualitative studies and literature reviews. Usability was tested by a think aloud approach and validated usability questionnaires.RESULTS: The I-Change Gout tool contains three consecutive sessions comprising 80 questions, 66 tailored textual feedback messages, and 40 tailored animated videos. Navigation through the sessions was determined by the patients' intention to adapt suboptimal ULT adherence. After the sessions, patients receive an overview of the personalized advices and plans to support ULT adherence. Usability testing among 20 gout patients that (ever) used ULT and seven healthcare professionals revealed an overall score for the tool of 8.4 ± 0.9 and 7.7 ± 1.0 (scale 1-10). Furthermore, participants reported a high intention to use and/or recommend the tool to others. Participants identified some issues for further improvement (e.g. redundant questions, technical issues, and text readability). If relevant, these were subsequently implemented in the I-Change Gout tool, to allow further testing among the following participants.CONCLUSION: This study provides initial support for the usability by patients and healthcare professionals of the I-Change Gout tool to support ULT adherence behavior.",

keywords = "BEHAVIORS, CARE, EDUCATION, EFFICACY, ENGAGEMENT, Gout, Gout Suppressants/therapeutic use, Gout/chemically induced, HEALTH LITERACY, Health information system, Humans, INTERVENTIONS, Internet, MANAGEMENT, MEDICATION ADHERENCE, Medication adherence, Motivation, PERCEPTIONS, Program evaluation, Self-management, Uric Acid/therapeutic use, BELIEFS",

author = "{Te Kampe}, Ritch and Annelies Boonen and Jansen, {Tim L} and Elling, {Jan Mathis} and Marcel Flendrie and {van Eijk-Hustings}, Yvonne and Matthijs Janssen and {van Durme}, Caroline and {de Vries}, Hein",

note = "{\textcopyright} 2022. The Author(s).",

year = "2022",

month = apr,

day = "7",

doi = "10.1186/s12911-022-01833-6",

language = "English",

volume = "22",

journal = "BMC Medical Informatics and Decision Making",

issn = "1472-6947",

publisher = "BioMed Central Ltd",

number = "1",

}

TY - JOUR

T1 - Development and usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy in gout

AU - Te Kampe, Ritch

AU - Boonen, Annelies

AU - Jansen, Tim L

AU - Elling, Jan Mathis

AU - Flendrie, Marcel

AU - van Eijk-Hustings, Yvonne

AU - Janssen, Matthijs

AU - van Durme, Caroline

AU - de Vries, Hein

PY - 2022/4/7

Y1 - 2022/4/7

N2 - BACKGROUND: The aim of this study is to develop and assess usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy (ULT) among gout patients in a clinical setting.METHODS: The content of the tool was based on the Integrated Change (I-Change) model. This model combines various socio-cognitive theories and assumes behavioral change is a result of becoming aware of the necessity of change by integrating pre-motivational, motivational, and post-motivational factors. An expert group (five gout experts, three health services researchers, and one health behavior expert) was assembled that decided in three meetings on the tool's specific content (assessments and personalized feedback) using information from preparatory qualitative studies and literature reviews. Usability was tested by a think aloud approach and validated usability questionnaires.RESULTS: The I-Change Gout tool contains three consecutive sessions comprising 80 questions, 66 tailored textual feedback messages, and 40 tailored animated videos. Navigation through the sessions was determined by the patients' intention to adapt suboptimal ULT adherence. After the sessions, patients receive an overview of the personalized advices and plans to support ULT adherence. Usability testing among 20 gout patients that (ever) used ULT and seven healthcare professionals revealed an overall score for the tool of 8.4 ± 0.9 and 7.7 ± 1.0 (scale 1-10). Furthermore, participants reported a high intention to use and/or recommend the tool to others. Participants identified some issues for further improvement (e.g. redundant questions, technical issues, and text readability). If relevant, these were subsequently implemented in the I-Change Gout tool, to allow further testing among the following participants.CONCLUSION: This study provides initial support for the usability by patients and healthcare professionals of the I-Change Gout tool to support ULT adherence behavior.

AB - BACKGROUND: The aim of this study is to develop and assess usability of a web-based patient-tailored tool to support adherence to urate-lowering therapy (ULT) among gout patients in a clinical setting.METHODS: The content of the tool was based on the Integrated Change (I-Change) model. This model combines various socio-cognitive theories and assumes behavioral change is a result of becoming aware of the necessity of change by integrating pre-motivational, motivational, and post-motivational factors. An expert group (five gout experts, three health services researchers, and one health behavior expert) was assembled that decided in three meetings on the tool's specific content (assessments and personalized feedback) using information from preparatory qualitative studies and literature reviews. Usability was tested by a think aloud approach and validated usability questionnaires.RESULTS: The I-Change Gout tool contains three consecutive sessions comprising 80 questions, 66 tailored textual feedback messages, and 40 tailored animated videos. Navigation through the sessions was determined by the patients' intention to adapt suboptimal ULT adherence. After the sessions, patients receive an overview of the personalized advices and plans to support ULT adherence. Usability testing among 20 gout patients that (ever) used ULT and seven healthcare professionals revealed an overall score for the tool of 8.4 ± 0.9 and 7.7 ± 1.0 (scale 1-10). Furthermore, participants reported a high intention to use and/or recommend the tool to others. Participants identified some issues for further improvement (e.g. redundant questions, technical issues, and text readability). If relevant, these were subsequently implemented in the I-Change Gout tool, to allow further testing among the following participants.CONCLUSION: This study provides initial support for the usability by patients and healthcare professionals of the I-Change Gout tool to support ULT adherence behavior.

KW - BEHAVIORS

KW - CARE

KW - EDUCATION

KW - EFFICACY

KW - ENGAGEMENT

KW - Gout

KW - Gout Suppressants/therapeutic use

KW - Gout/chemically induced

KW - HEALTH LITERACY

KW - Health information system

KW - Humans

KW - INTERVENTIONS

KW - Internet

KW - MANAGEMENT

KW - MEDICATION ADHERENCE

KW - Medication adherence

KW - Motivation

KW - PERCEPTIONS

KW - Program evaluation

KW - Self-management

KW - Uric Acid/therapeutic use

KW - BELIEFS

U2 - 10.1186/s12911-022-01833-6

DO - 10.1186/s12911-022-01833-6

M3 - Article

C2 - 35392890

SN - 1472-6947

VL - 22

JO - BMC Medical Informatics and Decision Making

JF - BMC Medical Informatics and Decision Making

IS - 1

M1 - 95

ER -