Data donation after death: A proposal to prevent the waste of medical research data

D.M. Shaw; J.V. Gross; T.C. Erren

doi:10.15252/embr.201541802

Data donation after death: A proposal to prevent the waste of medical research data

D.M. Shaw^*, J.V. Gross, T.C. Erren

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

Biological data from deceased persons could be a rich resource for research, but is difficult to use owing to privacy and consent concerns. A Data Donation Card and registry would enable people to contribute their medical data to future research, even after their death. [Image: see text]

Original language	English
Pages (from-to)	14-17
Number of pages	4
Journal	Embo Reports
Volume	17
Issue number	1
DOIs	https://doi.org/10.15252/embr.201541802
Publication status	Published - 1 Jan 2016

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10.15252/embr.201541802

Cite this

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title = "Data donation after death: A proposal to prevent the waste of medical research data",

abstract = "Biological data from deceased persons could be a rich resource for research, but is difficult to use owing to privacy and consent concerns. A Data Donation Card and registry would enable people to contribute their medical data to future research, even after their death. [Image: see text]",

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AB - Biological data from deceased persons could be a rich resource for research, but is difficult to use owing to privacy and consent concerns. A Data Donation Card and registry would enable people to contribute their medical data to future research, even after their death. [Image: see text]

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