Data donation after death: A proposal to prevent the waste of medical research data

D.M. Shaw*, J.V. Gross, T.C. Erren

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Biological data from deceased persons could be a rich resource for research, but is difficult to use owing to privacy and consent concerns. A Data Donation Card and registry would enable people to contribute their medical data to future research, even after their death. [Image: see text]
Original languageEnglish
Pages (from-to)14-17
Number of pages4
JournalEmbo Reports
Volume17
Issue number1
DOIs
Publication statusPublished - 1 Jan 2016

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