Course of Social Participation in the First 2 Years After Stroke and Its Associations With Demographic and Stroke-Related Factors

Daan P J Verberne, Marcel W M Post, Sebastian Köhler, Leeanne M Carey, Johanna M A Visser-Meily, Caroline M van Heugten*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

25 Citations (Web of Science)

Abstract

BACKGROUND: Many persons with stroke experience physical, cognitive, and emotional problems that contribute to restrictions in social participation. There is, however, a lack of knowledge on the long-term course of participation over time post-stroke.

OBJECTIVE: To describe the time course of participation up to 2 years post-stroke and to identify which demographic and stroke-related factors are associated with this time course.

METHODS: This was a multicenter, prospective cohort study following 390 persons with stroke from hospital admission up to 2 years (at 2, 6, 12, and 24 months). Multilevel modeling with linear and quadratic time effects was used to examine the course of the frequency of vocational and social/leisure activities, experienced restrictions, and satisfaction with participation.

RESULTS: The frequency of vocational activities increased up to 1 year post-stroke and leveled off thereafter. Older and lower-educated persons showed less favorable courses of participation than younger and higher-educated persons, respectively. The frequency of social/leisure activities decreased post-stroke. Participation restrictions declined up to 1 year post-stroke and leveled off thereafter. Persons dependent in activities of daily living (ADL) kept experiencing more restrictions throughout time than independent persons. Satisfaction with participation increased slightly over time.

CONCLUSIONS: Changes in participation occurred mostly in the first year post-stroke. Particularly older and lower-educated persons, and those dependent in ADL showed less favorable courses of participation up to 2 years post-stroke. Clinicians can apply these findings in identifying persons most at risk of long-term unfavorable participation outcome and, thus, target rehabilitation programs accordingly.

Original languageEnglish
Pages (from-to)821-833
Number of pages13
JournalNeurorehabilitation and Neural Repair
Volume32
Issue number9
DOIs
Publication statusPublished - Sep 2018

Keywords

  • social participation
  • prognosis
  • stroke
  • demography
  • QUALITY-OF-LIFE
  • 3 YEARS POSTSTROKE
  • POST STROKE
  • LONG-TERM
  • REHABILITATION-PARTICIPATION
  • PROSPECTIVE COHORT
  • UTRECHT SCALE
  • SURVIVORS
  • SATISFACTION
  • PREDICTION

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