TY - JOUR
T1 - Assessing quality of life in psychosocial and mental health disorders in children
T2 - a comprehensive overview and appraisal of generic health related quality of life measures
AU - Mierau, Jochen O.
AU - Kann-Weedage, Daphne
AU - Hoekstra, Pieter J.
AU - Spiegelaar, Lisan
AU - Jansen, Danielle E. M. C.
AU - Vermeulen, Karin M.
AU - Reijneveld, Sijmen A.
AU - van den Hoofdakker, Barbara J.
AU - Buskens, Erik
AU - van den Akker-van Marle, M. Elske
AU - Dirksen, Carmen D.
AU - Groenman, Annabeth P.
N1 - Funding Information:
This work was funded by the Netherlands organization for health research and development (grant number 729300201) to A.P. Groenman. This funding source had no role in the design of this study and will not have any role during its execution, analyses, interpretation of the data, or decision to submit results.
Publisher Copyright:
© 2020 The Author(s).
PY - 2020/7/3
Y1 - 2020/7/3
N2 - Background: Mental health problems often arise in childhood and adolescence and can have detrimental effects on people's quality of life (QoL). Therefore, it is of great importance for clinicians, policymakers and researchers to adequately measure QoL in children. With this review, we aim to provide an overview of existing generic measures of QoL suitable for economic evaluations in children with mental health problems.Methods: First, we undertook a meta-review of QoL instruments in which we identified all relevant instruments. Next, we performed a systematic review of the psychometric properties of the identified instruments. Lastly, the results were summarized in a decision tree.Results: This review provides an overview of these 22 generic instruments available to measure QoL in children with psychosocial and or mental health problems and their psychometric properties. A systematic search into the psychometric quality of these instruments found 195 suitable papers, of which 30 assessed psychometric quality in child and adolescent mental health.Conclusions: We found that none of the instruments was perfect for use in economic evaluation of child and adolescent mental health care as all instruments had disadvantages, ranging from lack of psychometric research, no proxy version, not being suitable for young children, no age-specific value set for children under 18, to insufficient focus on relevant domains (e.g. social and emotional domains).
AB - Background: Mental health problems often arise in childhood and adolescence and can have detrimental effects on people's quality of life (QoL). Therefore, it is of great importance for clinicians, policymakers and researchers to adequately measure QoL in children. With this review, we aim to provide an overview of existing generic measures of QoL suitable for economic evaluations in children with mental health problems.Methods: First, we undertook a meta-review of QoL instruments in which we identified all relevant instruments. Next, we performed a systematic review of the psychometric properties of the identified instruments. Lastly, the results were summarized in a decision tree.Results: This review provides an overview of these 22 generic instruments available to measure QoL in children with psychosocial and or mental health problems and their psychometric properties. A systematic search into the psychometric quality of these instruments found 195 suitable papers, of which 30 assessed psychometric quality in child and adolescent mental health.Conclusions: We found that none of the instruments was perfect for use in economic evaluation of child and adolescent mental health care as all instruments had disadvantages, ranging from lack of psychometric research, no proxy version, not being suitable for young children, no age-specific value set for children under 18, to insufficient focus on relevant domains (e.g. social and emotional domains).
KW - DEFICIT HYPERACTIVITY DISORDER
KW - ATTENTION-DEFICIT/HYPERACTIVITY DISORDER
KW - AUTISM SPECTRUM DISORDERS
KW - PSYCHOMETRIC PROPERTIES
KW - LANGUAGE DIFFICULTIES
KW - COST-EFFECTIVENESS
KW - TOURETTE SYNDROME
KW - OUTCOME MEASURES
KW - ADOLESCENTS
KW - VALIDITY
U2 - 10.1186/s12887-020-02220-8
DO - 10.1186/s12887-020-02220-8
M3 - Article
C2 - 32620157
SN - 1471-2431
VL - 20
SP - 1
EP - 16
JO - Bmc Pediatrics
JF - Bmc Pediatrics
IS - 1
M1 - 329
ER -