A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia

Maud Daemen; Jeroen Bruinsma; Christian Bakker; Rob Groot Zwaaftink; Raymond Koopmans; Andrea Oostijen; Bernard Loose; Frans Verhey; Marjolein de Vugt; Kirsten Peetoom

doi:10.1016/j.invent.2022.100530

A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia

Maud Daemen^*, Jeroen Bruinsma, Christian Bakker, Rob Groot Zwaaftink, Raymond Koopmans, Andrea Oostijen, Bernard Loose, Frans Verhey, Marjolein de Vugt, Kirsten Peetoom

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

2 Citations (Web of Science)

Abstract

Caregivers of persons with young-onset dementia (YOD) have an explicit need for tailored information and support about YOD. Therefore, during the European RHAPSODY project a web-based information and support program for YOD caregivers was developed. The program was recently tailored to the Dutch context. This study evaluates the Dutch version on user acceptability, usability, user satisfaction, and user behavior.

Methods: A cross-sectional study was conducted to evaluate the publicly available Dutch RHAPSODY program. A pop-up survey, extensive survey, and a semi-structured interview were used to evaluate how visitors perceived the program in terms of acceptability, usability, and their satisfaction. Web metrics registered user behavior. Quantitative data were analyzed using descriptive statistics and a deductive content analysis was used to analyze qualitative data.

Results: A total of 26 participants completed the pop-up survey, 19 completed the extensive survey, and 10 participated in the semi-structured interviews. Most participants were caregivers and healthcare professionals. They perceived the program as acceptable and usable in daily life and were satisfied with the quality of the content. The majority would use the program again and recommend it to others. Participants emphasized the necessity and desirability of a central platform incorporating educational and practical information about YOD. The page with an explanation about what YOD entails was most viewed (360 unique page views). Most time was spent on the page about the diagnostic process (6.5 min).

Conclusions: The Dutch RHAPSODY program showed good user acceptability, usability, and user satisfaction. The program met the need for tailored information and support regarding YOD and adds value to existing available support for YOD caregivers. Raising awareness about the program's existence among healthcare professionals may help caregivers to find appropriate post-diagnostic information. The program also provides educational opportunities for healthcare professionals.

Original language	English
Article number	100530
Number of pages	7
Journal	Internet interventions-The application of information technology in mental and behavioural health
Volume	28
DOIs	https://doi.org/10.1016/j.invent.2022.100530
Publication status	Published - Apr 2022

Keywords

Young-onset dementia
Caregiver
Web-based
E-learning
Education
TECHNOLOGY ACCEPTANCE MODEL
ALZHEIMERS-DISEASE
PEOPLE
FAMILY
CARE
INTERVENTIONS
EXPERIENCES
IMPACT

Access to Document

10.1016/j.invent.2022.100530

Cite this

Daemen, M., Bruinsma, J., Bakker, C., Zwaaftink, R. G., Koopmans, R., Oostijen, A., Loose, B., Verhey, F., de Vugt, M., & Peetoom, K. (2022). A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia. Internet interventions-The application of information technology in mental and behavioural health, 28, [100530]. https://doi.org/10.1016/j.invent.2022.100530

@article{1bca669fe99443d591a590e9603034cc,

title = "A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia",

abstract = "Caregivers of persons with young-onset dementia (YOD) have an explicit need for tailored information and support about YOD. Therefore, during the European RHAPSODY project a web-based information and support program for YOD caregivers was developed. The program was recently tailored to the Dutch context. This study evaluates the Dutch version on user acceptability, usability, user satisfaction, and user behavior.Methods: A cross-sectional study was conducted to evaluate the publicly available Dutch RHAPSODY program. A pop-up survey, extensive survey, and a semi-structured interview were used to evaluate how visitors perceived the program in terms of acceptability, usability, and their satisfaction. Web metrics registered user behavior. Quantitative data were analyzed using descriptive statistics and a deductive content analysis was used to analyze qualitative data.Results: A total of 26 participants completed the pop-up survey, 19 completed the extensive survey, and 10 participated in the semi-structured interviews. Most participants were caregivers and healthcare professionals. They perceived the program as acceptable and usable in daily life and were satisfied with the quality of the content. The majority would use the program again and recommend it to others. Participants emphasized the necessity and desirability of a central platform incorporating educational and practical information about YOD. The page with an explanation about what YOD entails was most viewed (360 unique page views). Most time was spent on the page about the diagnostic process (6.5 min).Conclusions: The Dutch RHAPSODY program showed good user acceptability, usability, and user satisfaction. The program met the need for tailored information and support regarding YOD and adds value to existing available support for YOD caregivers. Raising awareness about the program's existence among healthcare professionals may help caregivers to find appropriate post-diagnostic information. The program also provides educational opportunities for healthcare professionals.",

keywords = "Young-onset dementia, Caregiver, Web-based, E-learning, Education, TECHNOLOGY ACCEPTANCE MODEL, ALZHEIMERS-DISEASE, PEOPLE, FAMILY, CARE, INTERVENTIONS, EXPERIENCES, IMPACT",

author = "Maud Daemen and Jeroen Bruinsma and Christian Bakker and Zwaaftink, {Rob Groot} and Raymond Koopmans and Andrea Oostijen and Bernard Loose and Frans Verhey and {de Vugt}, Marjolein and Kirsten Peetoom",

year = "2022",

month = apr,

doi = "10.1016/j.invent.2022.100530",

language = "English",

volume = "28",

journal = "Internet Interventions",

issn = "2214-7829",

publisher = "Elsevier BV",

}

Daemen, M , Bruinsma, J, Bakker, C, Zwaaftink, RG, Koopmans, R, Oostijen, A, Loose, B, Verhey, F , de Vugt, M & Peetoom, K 2022, 'A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia', Internet interventions-The application of information technology in mental and behavioural health, vol. 28, 100530. https://doi.org/10.1016/j.invent.2022.100530

A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia. / Daemen, Maud ; Bruinsma, Jeroen; Bakker, Christian et al.
In: Internet interventions-The application of information technology in mental and behavioural health, Vol. 28, 100530, 04.2022.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - A cross-sectional evaluation of the Dutch RHAPSODY program

T2 - online information and support for caregivers of persons with young-onset dementia

AU - Daemen, Maud

AU - Bruinsma, Jeroen

AU - Bakker, Christian

AU - Zwaaftink, Rob Groot

AU - Koopmans, Raymond

AU - Oostijen, Andrea

AU - Loose, Bernard

AU - Verhey, Frans

AU - de Vugt, Marjolein

AU - Peetoom, Kirsten

PY - 2022/4

Y1 - 2022/4

N2 - Caregivers of persons with young-onset dementia (YOD) have an explicit need for tailored information and support about YOD. Therefore, during the European RHAPSODY project a web-based information and support program for YOD caregivers was developed. The program was recently tailored to the Dutch context. This study evaluates the Dutch version on user acceptability, usability, user satisfaction, and user behavior.Methods: A cross-sectional study was conducted to evaluate the publicly available Dutch RHAPSODY program. A pop-up survey, extensive survey, and a semi-structured interview were used to evaluate how visitors perceived the program in terms of acceptability, usability, and their satisfaction. Web metrics registered user behavior. Quantitative data were analyzed using descriptive statistics and a deductive content analysis was used to analyze qualitative data.Results: A total of 26 participants completed the pop-up survey, 19 completed the extensive survey, and 10 participated in the semi-structured interviews. Most participants were caregivers and healthcare professionals. They perceived the program as acceptable and usable in daily life and were satisfied with the quality of the content. The majority would use the program again and recommend it to others. Participants emphasized the necessity and desirability of a central platform incorporating educational and practical information about YOD. The page with an explanation about what YOD entails was most viewed (360 unique page views). Most time was spent on the page about the diagnostic process (6.5 min).Conclusions: The Dutch RHAPSODY program showed good user acceptability, usability, and user satisfaction. The program met the need for tailored information and support regarding YOD and adds value to existing available support for YOD caregivers. Raising awareness about the program's existence among healthcare professionals may help caregivers to find appropriate post-diagnostic information. The program also provides educational opportunities for healthcare professionals.

AB - Caregivers of persons with young-onset dementia (YOD) have an explicit need for tailored information and support about YOD. Therefore, during the European RHAPSODY project a web-based information and support program for YOD caregivers was developed. The program was recently tailored to the Dutch context. This study evaluates the Dutch version on user acceptability, usability, user satisfaction, and user behavior.Methods: A cross-sectional study was conducted to evaluate the publicly available Dutch RHAPSODY program. A pop-up survey, extensive survey, and a semi-structured interview were used to evaluate how visitors perceived the program in terms of acceptability, usability, and their satisfaction. Web metrics registered user behavior. Quantitative data were analyzed using descriptive statistics and a deductive content analysis was used to analyze qualitative data.Results: A total of 26 participants completed the pop-up survey, 19 completed the extensive survey, and 10 participated in the semi-structured interviews. Most participants were caregivers and healthcare professionals. They perceived the program as acceptable and usable in daily life and were satisfied with the quality of the content. The majority would use the program again and recommend it to others. Participants emphasized the necessity and desirability of a central platform incorporating educational and practical information about YOD. The page with an explanation about what YOD entails was most viewed (360 unique page views). Most time was spent on the page about the diagnostic process (6.5 min).Conclusions: The Dutch RHAPSODY program showed good user acceptability, usability, and user satisfaction. The program met the need for tailored information and support regarding YOD and adds value to existing available support for YOD caregivers. Raising awareness about the program's existence among healthcare professionals may help caregivers to find appropriate post-diagnostic information. The program also provides educational opportunities for healthcare professionals.

KW - Young-onset dementia

KW - Caregiver

KW - Web-based

KW - E-learning

KW - Education

KW - TECHNOLOGY ACCEPTANCE MODEL

KW - ALZHEIMERS-DISEASE

KW - PEOPLE

KW - FAMILY

KW - CARE

KW - INTERVENTIONS

KW - EXPERIENCES

KW - IMPACT

U2 - 10.1016/j.invent.2022.100530

DO - 10.1016/j.invent.2022.100530

M3 - Article

C2 - 35433278

SN - 2214-7829

VL - 28

JO - Internet Interventions

JF - Internet Interventions

M1 - 100530

ER -

Daemen M , Bruinsma J, Bakker C, Zwaaftink RG, Koopmans R, Oostijen A et al. A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia. Internet interventions-The application of information technology in mental and behavioural health. 2022 Apr;28:100530. doi: 10.1016/j.invent.2022.100530