A conversation approach based on shared goal-setting and shared decision-making for nurses in cancer aftercare: A developmental study

Jolanda H. H. M. Friesen-Storms*, Gerrie J. J. W. Bours, Ingrid C. G. Snijders, Trudy van der Weijden, Kon-Siong G. Jie, Anna J. H. M. Beurskens

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Purpose: This study aimed to develop and pretest a systematic conversation approach for nurses to tailor aftercare to oncology patient's goals, unmet needs and wishes. Methods: We used an iterative developmental process for complex interventions: 1. Identifying problems 2. Identifying overall objectives 3. Designing the intervention 4. Pretesting and adapting the intervention. Results: The main results of the problem identification were: non-systematic and incomplete screening of potential issues, caveats in providing information, and shared decision-making. The overall objective formulated was: To develop a model for aftercare conversations based on shared goal-setting and decision-making. The conversation approach consists of four phases: 1. Preparation of the consultation including a questionnaire, 2. Shared goal-setting by means of a tool visualizing domains of life, and 3. Shared care planning by means of an overview of possible choices in aftercare, a database with health care professionals and a cancer survivorship care plan. 4. Evaluation. The results of the pretest revealed that the conversation approach needs to be flexible and tailored to the patient and practice setting, and embedded in the care processes. The conversation approach was perceived as enhancing patient-centeredness and leading to more in-depth consultations. Conclusion: The conversation approach was developed in co-creation with stakeholders. The results of the pretest revealed important implications and suggestions for implementation in routine care. The aftercare conversation approach can be used by nurses to provide tailored patient-centered evidence-based aftercare. Tailored aftercare should support oncology patient's goals, unmet needs and wishes. Further tailoring is needed.
Original languageEnglish
Pages (from-to)107-116
Number of pages10
JournalEuropean Journal of Oncology Nursing
Volume35
DOIs
Publication statusPublished - 1 Aug 2018

Keywords

  • Cancer aftercare
  • Shared decision-making
  • Goal setting
  • Evidence-based practice
  • Oncology nurses
  • SUPPORTIVE CARE NEEDS
  • RANDOMIZED CONTROLLED-TRIAL
  • FRAIL OLDER PATIENTS
  • SURVIVORSHIP CARE
  • SELF-MANAGEMENT
  • FEASIBILITY
  • MODEL
  • INTERVENTION
  • REHABILITATION
  • ACCEPTABILITY

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