A conceptual framework for patient-directed knowledge tools to support patient-centred care: Results from an evidence-informed consensus meeting

Dunja Dreesens*, Anne Stiggelbout, Thomas Agoritsas, Glyn Elwyn, Signe Flottorp, Jeremy Grimshaw, Leontien Kremer, Nancy Santesso, Dawn Stacey, Shaun Treweek, Melissa Armstrong, Anna Gagliardi, Sophie Hill, France Legare, Rebecca Ryan, Per Vandvik, Trudy van der Weijden

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Objective: Patient-directed knowledge tools are designed to engage patients in dialogue or deliberation, to support patient decision-making or self-care of chronic conditions. However, an abundance of these exists. The tools themselves and their purposes are not always clearly defined; creating challenges for developers and users (professionals, patients). The study's aim was to develop a conceptual framework of patient-directed knowledge tool types.

Methods: A face-to-face evidence-informed consensus meeting with 15 international experts. After the meeting, the framework went through two rounds of feedback before informal consensus was reached.

Results: A conceptual framework containing five patient-directed knowledge tool types was developed. The first part of the framework describes the tools' purposes and the second focuses on the tools' core elements.

Conclusion: The framework provides clarity on which types of patient-directed tools exist, the purposes they serve, and which core elements they prototypically include. It is a working framework and will require further refinement as the area develops, alongside validation with a broader group of stakeholders.

Practice implications: The framework assists developers and users to know which type a tool belongs, its purpose and core elements, helping them to develop and use the right tool for the right job. (C) 2019 Elsevier B.V. All rights reserved.

Original languageEnglish
Pages (from-to)1898-1904
Number of pages7
JournalPatient Education and Counseling
Volume102
Issue number10
DOIs
Publication statusPublished - Oct 2019

Keywords

  • Framework
  • Knowledge
  • Tools
  • (Shared) decision-making
  • Patient education
  • Communication
  • SHARED DECISION-MAKING
  • PATIENTS PREFERENCES
  • COMMUNICATION
  • EXPECTATIONS
  • INVOLVEMENT
  • ENGAGEMENT
  • BENEFITS
  • OUTCOMES
  • HARMS
  • TESTS

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