ABC-tool reinvented: development of a disease-specific 'Assessment of Burden of Chronic Conditions (ABCC)-tool' for multiple chronic conditions

Esther A. Boudewijns*, Danny Claessens, Onno C. P. van Schayck, Lotte C. E. M. Keijsers, Philippe L. Salome, Johannes C. C. M. in 't Veen, Henk J. G. Bilo, Annerika H. M. Gidding-Slok

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates self-management is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice. Methods Requirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations. Results The ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations. Conclusions The ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations.

Original languageEnglish
Article number11
Number of pages7
JournalBMC Family Practice
Volume21
Issue number1
DOIs
Publication statusPublished - 13 Jan 2020

Keywords

  • Burden of disease
  • Chronic disease
  • ABCC-tool
  • Self-management
  • Questionnaire
  • Asthma
  • Diabetes mellitus type 2
  • COPD
  • Shared decision making
  • Patient-centered care
  • QUALITY-OF-LIFE
  • PATIENT-PROVIDER COMMUNICATION
  • DIABETES SELF-CARE
  • MANAGEMENT
  • SCALE
  • PROGRAMS
  • MEDICINE

Cite this