TY - JOUR
T1 - 2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis
AU - Bech, Bianca
AU - Primdahl, Jette
AU - van Tubergen, Astrid
AU - Voshaar, Marieke
AU - Zangi, Heidi A.
AU - Barbosa, Lurdes
AU - Bostrom, Carina
AU - Boteva, Boryana
AU - Carubbi, Francesco
AU - Fayet, Francoise
AU - Ferreira, Ricardo J. O.
AU - Hoeper, Kirsten
AU - Kocher, Agnes
AU - Kukkurainen, Marja Leena
AU - Lion, Vivienne
AU - Minnock, Patricia
AU - Moretti, Antonella
AU - Ndosi, Mwidimi
AU - Nikolic, Milena Pavic
AU - Schirmer, Michael
AU - Smucrova, Hana
AU - de la Torre-Aboki, Jenny
AU - Waite-Jones, Jennifer
AU - van Eijk-Hustings, Yvonne
N1 - Funding Information:
1Center for Rheumatology and Spine Diseases, Centre of Head and Orthopaedics, Rigshospitalet - Glostrup, Glostrup, Denmark 2Danish Hospital for Rheumatic Diseases, University Hospital of Southern Denmark, Sønderborg, Denmark 3Department of Regional Health Research, University of Southern Denmark, Odense, Denmark 4Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, Maastricht, The Netherlands 5CAPHRI Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands 6Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands 7National Advisory Unit on Rehabilitation in Rheumatology, Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway 8Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal 9Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm, Sweden 10Functional Area Occupational Therapy & Physiotherapy, Allied Health Professionals Function, Karolinska University Hospital, Stockholm, Sweden 11Bulgarian Organisation for People with Rheumatic Diseases (BOPRD), www. revmatologia.org, Sofia, Bulgaria 12Rheumatology Unit, Department of Biotechnological and Applied Clinical Science, School of Medicine, University of L’Aquila, L’Aquila, Italy 13Department of Medicine, ASL1 Avezzano-Sulmona-L’Aquila, L’Aquila, Italy 14Department of Rheumatology, Hôpital Gabriel Montpied, Clermont-Ferrand, France 15Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal 16Health Sciences Research Unit: Nursing (UICiSA:E), Nursing School of Coimbra, Coimbra, Portugal 17Clinic for Immunology and Rheumatology, Hannover Medical School, Hannover, Germany 18Institute of Nursing Science (INS), Department of Public Health (DPH), University of Basel, Basel, Switzerland 19Department of Rheumatology, Immunology and Allergology, Inselspital University Hospital Bern, Bern, Switzerland 20Lahti University of Applied Sciences, Faculty of Social and Health Care, Lahti, Finland 21Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck, Austria 22Rheumatic Musculoskeletal Disease Unit, Our Lady’s Hospice and Care Services, Dublin, Ireland 23Clinica Reumatologica, Ospedale C. Urbani, Università Politecnica delle Marche, Jesi (An), Italy 24Department of Nursing and Midwifery, University of the West of England, Bristol, UK 25Department of Rhematology, University Medical Centre Ljubljana, Ljubljana, Slovenia 26Department of Rehabilitation, Institute of Rheumatology, Prague, Czech Republic 27Day Hospital Unit, Alicante General and University Hospital, Alicante, Spain 28School of Healthcare, University of Leeds, Leeds, UK 29Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht, The Netherlands Acknowledgements The task force gratefully acknowledges the financial support provided by EULAR. Also, a special thanks to senior researcher and associate professor Bente Appel Esbensen and head nurse Heidi Morsø Schrøder, Center for Rheumatology and Spine Diseases, Centre for Head and Orthopaedics, Rigshospitalet -Glostrup, Copenhagen, Denmark for their substantial financial support of the fellow.
Funding Information:
Contributors YvE-H and AvT applied and received the EULAR project grant and assembled the task force. YvE-H and BB performed the systematic literature research. JP, AvT, HAZ, MV and YvE-H participated in the steering committee. BB was responsible for drafting the first version of the manuscript. All authors have critically reviewed the draft for important intellectual content and approved the final version of the manuscript. Funding This work is endorsed and financed by EULAR. Grant number HPR036. Competing interests None declared.
Publisher Copyright:
© Author(s) (or their employer(s)) 2020. No commercial re-use. See rights and permissions. Published by BMJ.
PY - 2020/1
Y1 - 2020/1
N2 - To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse's role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA.
AB - To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse's role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA.
KW - RHEUMATOLOGIST FOLLOW-UP
KW - DISEASE-ACTIVITY
KW - HEALTH-PROFESSIONALS
KW - CARDIOVASCULAR RISK
KW - PATIENT EDUCATION
KW - SELF-EFFICACY
KW - LED CARE
KW - PATIENTS EXPERIENCES
KW - ECONOMIC EVALUATIONS
KW - RHEUMATIC-DISEASES
U2 - 10.1136/annrheumdis-2019-215458
DO - 10.1136/annrheumdis-2019-215458
M3 - (Systematic) Review article
C2 - 31300458
SN - 0003-4967
VL - 79
SP - 61
EP - 68
JO - Annals of the Rheumatic Diseases
JF - Annals of the Rheumatic Diseases
IS - 1
ER -